Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 International Conference is open for registrations! You can find out more on our dedicated webpage and register your place on our booking form.
We are looking forward to an exciting and interesting family conference, beginning with a welcome session on the evening of 25th July and full day sessions on 26th and 27th July, finishing with a fun filled hoolie!
Cystinosis is an exceptionally rare condition characterised by the crystallisation of the amino acid cystine in various body organs and muscles. Cystinosis is an inherited disease occurring in about 1 in 200,000 births within developed countries.
With better understanding, earlier diagnosis and improved treatments, people with cystinosis are able to lead a long, full life. It is the Foundation's aim to strive for continued improvements, by informing and sharing across researchers and the cystinosis community.